Thoughts on #BrainTumorThursday


#BrainTumorThursday is a global event on Twitter and people from around the world participate as a community.  The point of #BrainTumorThursday is to raise awareness of brain tumors, provide useful information and news about brain tumors, convey support, hope, and love to brain tumor patients and their friends and family.  Most of the people involved are brain tumor patients themselves or have been touched in some other way by brain tumors.

The real question at this point:  Is #BrainTumor actually raising awareness about brain tumors.

  • One could answer yes since Twitter involvement has recently been averaging 2500 – 3000 tweets during “worldwide Thursday,” with 500 – 800 participants.
  • However, there are a number of stats and points that would lead one to conclude that the desired impact is not being achieved:
  1. The majority of the tweets come from a relatively small group of dedicated people.  A recent example shows that about the top 5 participants accounted for about 41% of the tweets.
  2. The number of participants with over 100,000 followers usually does not top 10 and is often far less.
  3. After the top 80 or so participants, the number of follower for the participants falls below 1000, eventually bottoming out at below 15.
  4. Among the core participants, there is significant duplication of followers.
  5. Each Thursday, it is not unusual to see a significant number of of RTs of fellow participants.

In coming posts, I plan to discuss: whether these “problems” matter (if one person learns something each Thursday, is the campaign a success?);  whether it is possible to evaluate the actual impact of #BrainTumorThursday; and  whether there are actions to be taken to improve the effectiveness of the campaign.

I not only welcome your comments on this post, but also beg you to share your thoughts.

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6 thoughts on “Thoughts on #BrainTumorThursday

  1. Pingback: Thoughts on #BrainTumorThursday « hopeforheather

  2. Brain Tumor Thursday helped me find the only other person, I am aware of, with the same tumor I have. I don’t know about the other person, but I have learned a lot about our rare disease and living with this this lovely rare tumor since meeting her. Being able to discuss issues has been a blessing.

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