What’s Next for #BrainTumorThursday


At its core, #BrainTumorThursday will always be about raising awareness, providing information, and supporting the Twitter brain tumor community, from the newly diagnosed to the long-time survivor, from the new caregiver to the experienced care giving, and from family and friends struggling to understand a brain tumor diagnosis to family and friends experiencing the tragedy of losing someone to this awful disease.  But the question that has come up for me and many others is what’s next.

Given the results from recent #BrainTumorThursday campaigns, there seems to be a platform in place from which real advocacy could begin.  In fact, it can be argued that its already has begun:

  • Push the campaign to other social networks.  The idea here is simple: reach other social media audiences that are not focused on Twitter.  Not everybody uses Twitter or uses it actively.  Accordingly, we need to make an effort to build content and audiences on site like Facebook and Google+.  Working with the theory that there will not be full overlap between Titter and Facebook or Twitter and Google+, repeating the same content is not an issue.  Plus, the same hastags can be used.  Of course, both Facebook and Google+ are not hampered by a 140 character limit.  There is already a presence on Facebook and on Google+.  There are certainly other networks that make sense.
  • Use the campaign as a launching pad to other media formats.  Building a positive reputation through being active in #BrainTumorThursday” can launch someone into other media forms
  1. The most exciting example of how this works is what happened to Kelly Marshall and how she found her way to traditional news.  Kelly tweets as @tumourrumor and a reporter found her through her tweets.  The result of this was an interview in which she called for a national registry in Canada.
  2. Another less exciting example is my  interview on BlogTalkRadio.  Again, I was “discovered” through my tweets on Twitter and interviewed.  While far less public than Kelly’s interview, it may have reached a new audience.
  • Build something on Twitter than transitions outside of Twitter.  The best examples of these are the meeting between celebrities and people where the campaign began on Twitter.  This is harder to do than it seems.  Our first attempt was to try to get Ben Affleck to meet #SuperJosh.  The effort appears to have fallen short, but it remains a viable concept.
  • Use #BrainTumorThursday as a vehicle to raise funds for research, etc.  One effort was started on gofundme to raise research funding for the American Brain Tumor Association.  As of this writing, there is only one contributor @melee_me. There may be fundamental flows with this fundraiser that can be corrected in the future.  Perhaps it is not positioned correctly and does not clearly indicate that is intended to be a “micro funding” campaign, with small donations being more than welcome.  It may also be the case that the audience to date is not quite right.  In my case, given the financial havoc created by this disease, I don’t feel comfortable with donating.  This of course is quite ironic since I started the funding effort.  In any event, there may be others who feel the same way.

As is not unusual for me at the end of one of these posts, I feel like this has been a rambling post that is long on words and short on substance.  With that in mind, I strongly encourage you to add your thoughts about next steps for #BrainTumorThursday,

  •  but it may take time have the opportunity to meet Ben Affleck?
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