Obamacare and Brain Tumors


This article disturbs me: Brain Tumor Survivor Just Got an Obamacare Surprise.  Why? Initially it seemed that Obamacare would be a big help for brain tumor patients by doing away with insurance denials based on preexisting conditions and reducing health care costs.  Now, at least one of these perceived benefits has evaporated.

Obamacare is the popular nickname for the Affordable Care Act.   Based on the name alone, it is logical to expect health care costs to decrease.  However, this story reminds us that the only thing that has happened is that insurance coverage has been rendered available and affordable, not that the overall cost of health care has decreased.


Amanda Pratt, a survivor of a fist-sized, did see her monthly premiums go down $14, an annual savings of $168.  But then, the other shoe dropped: her copay for a visit to a doctor increased $30 and her copay for prescriptions went up $20.  Now, I do happen to know a bit about brain tumors and it is quite likely that she has at least one related medication that has to be filled monthly.  That alone puts her in the red, totaling $240 a year.  It’s not unreasonable to expect at least 2 visits to a doctor a year related to her brain tumor, which brings us up to $300.  At least one MRI a year adds increased costs of $1,400 so that the new total is $1,700.

So, her “Obamacare surprise” is that she traded $1,700 to get a $168 premium reduction.  And that’s not the whole negative impact on her, much more is described in the article.  This makes me wonder how many more of the 612,000 Americans living with a brain tumor are facing the same thing.  For that matter, how many more Americans living with cancer will get the same surprise?

Now I understand why so many people were opposed to Obamacare,  Says Amanda: “The Affordable Care Act in general, I think, it’s a great idea, but the road to hell is paved in good intentions.”


January, 2014 #BrainTumorThursday

My apologies for my dilatory presentation of of the chronicle of the first three brain tumor awareness endeavors for January and the new year,  My preliminary assessment leads me to the supposition that we may be mired in the winter doldrums.  My current prognostication is that the culmination of our efforts will lead to between 150 and 180 million impacts, together with the additional statistics for the remaining indices by which we measure success.

Although these projections show that January will not achieve the level of success in December, 2013 (217M impact), our combined efforts point to a strong potential to attain my aspiration of 2 billion impacts for 2014.

Toward that end, please keep up the good work!

How to Nominate #SuperJosh for a Shorty Award


The Shorty Awards are upon us, and I have begun campaigning for my personal brain tumor hero Josh Wilson a/k/a @JourneyJoshuas a/k/a #superJosh.  The purpose of this post is to provide instructions on how to nominate Josh.  A separate post, if I get around to it, will explain why I think #BrainTumorAwareness as his category.

How to Nominate Josh

Unfortunately, there are one or two wrinkles in the process.  To start, click Nominate Josh.  In most instances, you will be taken to a page that looks like this (you may have to scroll up):


Click the above image to enlarge it so you can see the details.  There are a few things you need to confirm and and do clicking the red button..

  1. Make sure the drop down for “Choose a category”  that is found in the upper left of the form is set to “Other.”
  2. Don’t worry about the box found in the upper right of the form ; it is auto-populated.
  3. In the “Tweet box,” make sure @JourneyJoshuas is inserted in the spot where shown.  
  4. In the “Tweet box,”  you are required to add a reason following the word because.  Your only restraint is the character limitation imposed by Twitter.  It would not hurt to include #BTSM in the tweet if you can fit it.

The typical problem is that the pull down box on the upper left is set to #Activism or any one of a number of categories.  Unless that box is set to “Other,” the nomination will be in another category.  That’s not necessarily bad so long as you are able to nominate him in #BrainTumorActivism.

If you have problems, describe them in a comment below and I will try to help.


Amazing totals for the 2013 #BrainTumorThursday campaign

Words fail me in attempting to describe the success of the 2013 campaign for brain tumor awareness.  The only thing to do is to let the numbers do the talking.  Are you ready?

2013 Totals

Impacts (deliveries to people’s timelines): About 970 Million.

Participants: over 47,000.

Tweets: around 170,000.

That’s right, nearly a billion impressions.  I truly have no idea which, if any, of these stats are actually relevant.  All I know is that the numbers are huge and it is clear that the level of brain tumor awareness on Twitter has been increased.

A huge thank you to every single person participation #BrainTumorThusday campaign had a part in generating these huge numbers.  There are a few people who have been valuable t, nevertheless there are a few “MVPs” who should get a special shout out.

People contributing over 1700 tweets in 2013 (the Work Horses), in descending order:

People contributing over 10M Impression in 2013 (the Influence Masters), in descending order:

There is a new measurement category that may or may not be relevant.  Some people are mentioned over and over again in tweets.  I have no idea what it means, but it must mean something.  In any event, here they are.

People mentioned over 2,800 times in 2013 (the Buzz Generators), in descending order:

Especially noteworthy

  • Two contributors are on all three lists, which I believe reflects extraordinary effort in 2013: @melee_me and @pacificcove.
  • Not only is @journeyjoshuas known as #SuperJosh and the official superhero of #BrainTumorThursday, but he was mentioned over 28,000 times!
  • Although this may not be well known, but @uvmer created #BrainTumorThursday. Hey Nancy, did you ever think it would get this big?  Wow!