Magic formula for a brain tumor awareness tweet?

As many know, I have been trying to raise awareness now for quite some time.  Somehow this week I created what has turned out to be an explosive tweet.  In was tweeted under the hashtag #BTSM and, as of the writing of this post, it had 1,715 retweets and counting. And those are just the retweets captured by Twitter and reported beneath the tweet, i.e, those retweets where the retweet button was used. I have not even attempted to capture any stats related to other forms in which the tweet has been spread around twitter.

The only thing that makes sense is that the photo was, in and of itself, compelling, but I never expected it to garner so much attention.  In any event, the fact that at least 1715 people has engaged with a tweet is both mind numbing and fantastic.  Perhaps this is when real change begins!

Embedded image permalink

The tweet itself can be found here.


{Story6} I have a brain tumor

This is a story worth reading.

Dancing On My Ashes

Through the month of March, we’ve had a guest series called “This is my story, this is my song.” There were personal journeys of hope, victory, courage, and redemption that you needed to hear! I know, I know, it’s April… but I have another ONE!

This series has been too much fun! We can’t stop… we won’t stop… (Eek! I’m sounding like Miley Cyrus.) I (Heather) can’t wait for you to meet Preston! He’s the first male appearing on our blog! {insert applause machine.} Psh—this blog’s not just for females anyway. I’m so thankful he agreed to share some of his journey with you. I met Preston years and years ago when he was hired as the photographer at the university where I was employed. He is so personable and joyful! Once you’ve met Preston, you won’t forget him! So nine years later, when our paths crossed again, I was…

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Survey: Medical Marijuana as a Brain Tumor Treatment: early results

I thought that it would be interesting to see the early trends with the survey

What is your relationship to someone with a brain tumor?

I have now or have had a brain tumor. 66.67% (10)
A close family member now has or has had a brain tumor. 13.33% (2)
A friend now has or has had a brain tumor. 13.33% (2)
A friend or loved one passed away from a brain tumor. 6.67% (1)
I am a member of the medical community. 0.00% (0)
I am a caregiver 20.00% (3)
No relationship, I’m an advocate or just interested. 0.00% (0)
Total Respondents: 15

Note:  a participant may check more than one answer, which is why there are more answers than participants.  The percentage are calculated as the percentage of answers to the total number of respondents.  Thus 10 out of 15 answered that they have a brain tumor which yields 66.67%

Are you likely to support the legalization of marijuana in your community as a treatment for brain tumors?

Yes. In any form subject only to a requirement of a prescription from a physician. 60.00% (9)
Yes, but only in certain forms like cannabis oil and subject to a requirement of a prescription from a physician. 26.67% (4)
No. More research is needed. 6.67% (1)
No. Not under any circumstances 6.67% (1)
Total 15

 Take the Survey

#BrainTumorThursday Awareness Campaign for March 2014 and Q1 2014


It is exciting to discuss the brain tumor awareness campaign results for March 2014 because they anchor an effective first quarter of 2014.  We amassed around 10,500 tweets from nearly 6,000 participants, yielding approximately 97,000,000 time line deliveries.  The March numbers were influenced by a solid performance in the campaign last week.

Overall, for the first three months of the 2014 brain tumor awareness campaign, over 63,500 tweets from nearly 49,000 participants produced over 390,000,000 time line deliveries.  WOW.

There is one number reflected in the quarterly that I find suspicious: 49,000 participants.  It just seems to be too high.  In the past, I would not have worried much about the participant number; I was just focused on the time line deliveries.  However, I have recently become convinced that the number of participants is at least as important as time line deliveries, if not more so.  The bottom line is that thousands of people are tweeting and/or retweeting about awareness and touching time lines hundreds of millions of times.  We can help but increase awareness at these levels.

My last observation is that we are on track for over a billion time line deliveries in 2014.  That to me is a stunning and exciting fact.

February 2014 #BrainTumorThursday Stats

I think that we may have been spoiled by the lofty numbers accomplished toward the end of 2013: February totals appears to be off from January.  I use “appears” because, more so than is typically the case, the totals we get from third party apps have informational gaps.  I know that the totals miss at least 5 million impacts (deliveries to people’s timelines) and perhaps a good many more.  So for February, we will have to rely on the best information available coupled with what I hope is a rational guess on my part.  So with a huge caveat about accuracy, February looks like this:

92M Impacts

7,500 Tweets

3,700 participants.

Completely accurate or not, 3,700 participants is quite significant – whether a tweet or a re-tweet each one of those people knowingly took an action to further brain tumor awareness. Now that is something to build on!

Last #BrainTumorThursday for February 2014

You may have noticed that I didn’t report anything last week.  That was because there was a pretty big gap in the Twitter feed to third party apps, and I’ve been trying to get a handle on what was missed.  I’ve pushed that exercise to the February wrap up next week.  For this week, we’ll do a quick review:

Very roughly, about 16.8 million impressions, 1,400 tweets, and 700 participants.

This week’s superstars:

Have a great weekend

#BrainTumorThursday through February 14, 2014

February 14 is the halfway point for the month, so it makes sense for us to take a look at where we are. Over 44M deliveries of the hashtag to people’s feeds, nearly 3,800 tweets and about 2,000 Participants.

So far, February is lagging behind January.  To be fair, January did have 5 Thursdays.  Still, there is untapped potential for February.  Let’s “take it to the streets” this week!

Big contributors in the first half of February include: